FAMILY RESOURCES
Resources for the
journey ahead.
Whether you're navigating a new Down syndrome diagnosis or looking for support along the way, we've gathered resources to help you find trusted information, practical support, and connection with other families.
START HERE
Find resources for where you are.
We've gathered practical information to help families navigate financial, medical, educational, and community resources after receiving a Down syndrome diagnosis.
STATE RESOURCES
Find resources where you live.
Explore state-specific information about insurance waivers, financial assistance, early intervention, local Down syndrome organizations, and other resources available to families.
Explore State Resources →NATIONAL RESOURCES
Helpful information for families across the U.S.
Find information about SSI, savings plans, health and medical resources, and national Down syndrome organizations that support individuals and families.
Explore National Resources →INTERNATIONAL RESOURCES
Resources beyond the United States.
Explore Down syndrome organizations and resources available to families around the world. Our international resource list continues to grow as we learn about additional organizations and support.
Explore International Resources →LEARN WITH US
Let's Talk about the things that matter to our community.
Our Let's Talk Series explores topics specifically relevant to individuals with Down syndrome and their families. Each month, we focus on a different topic and share helpful information, resources, and conversations for the journey.
Explore the Let's Talk Series →
FIND YOUR COMMUNITY
Connect with families who understand.
Sometimes the most helpful resource is another family who gets it. The Rising Kites Community helps families raising a child with Down syndrome connect with others across the United States and around the world.
Already part of the community?
Visit the Rising Kites Community page to find connections and resources available to members.
Access the Community →Want to join us?
Sign up to become part of the Rising Kites Community and connect with other families who understand the journey.
Sign Up for the Community →NEW TO THE DOWN SYNDROME COMMUNITY?
We'd love to send you a bag.
Rising Kites resource bags are filled with trusted information, meaningful resources, and encouragement for families receiving a prenatal or postnatal Down syndrome diagnosis.
Bags are always provided to families at no cost.
BEREAVEMENT SUPPORT
Support for families carrying loss.
For families who have experienced the loss of a baby or child with Down syndrome, our Bereavement Community offers a space for connection, resources, and support while honoring the life of your child.
Access the Bereavement Community →FROM A RISING KITES FAMILY
“Opening that bag was like receiving a hand to hold—it wasn't just gifts, it was a message that we weren't alone and that others believed in our daughter's beautiful potential.
Each item felt like a tool to help our daughter thrive, but even more than that, it gave us hope and reassurance in a season when we needed it most.”
— Madison, Bag Recipient